Skip to main content
Search
Cures
Roadmap to Cures
Where We’ve Been
Roadmap 1.0
Delivery
Viral
Non-Viral
Small RNA
Cargo
Gene Therapy
Base Editing
Prime Editing
MECP2 Reactivation
RNA Editing
RNA Trans-splicing
Tracking
Rett Syndrome Global Registry
Citizen Health
Biomarkers
Biosensors
VIBRANT
Families
Was your child
recently diagnosed?
We’re here for you.
Reach Out Now
Recently Diagnosed
For All Families
About Rett Syndrome
Genetics Primer
Rett Syndrome Global Registry
Rett Clinics & Clinical Trials
Thriving with Rett Guides
Rett Fact Cards
Researchers
Fundraise
Start Your Own
Crowdfunding Page
We’ll get you set up!
Get Started
Get Started Now
Join Us
Events
RettGive Campaigns
Facebook Fundraisers
Donate
About Us
News
Get timely, factual news about Rett syndrome.
Browse News
Articles
Research
Community
Fundraising
Press Releases
Rett in the News
Donate
Join Us
Donate
Join Us
Cures
Roadmap to Cures
Where We’ve Been
Roadmap 1.0
Delivery
Viral
Non-Viral
Small RNA
Cargo
Gene Therapy
Base Editing
Prime Editing
MECP2 Reactivation
RNA Editing
RNA Trans-splicing
Tracking
Rett Syndrome Global Registry
Citizen Health
Biomarkers
Biosensors
VIBRANT
Families
Recently Diagnosed
For All Families
About Rett Syndrome
Genetics Primer
Rett Syndrome Global Registry
Rett Clinics & Clinical Trials
Thriving with Rett Guides
Rett Fact Cards
Researchers
Fundraise
Get Started Now
Join Us
Events
RettGive Campaigns
Facebook Fundraisers
Donate
About Us
News
Articles
Research
Community
Fundraising
Press Releases
Rett in the News
Rett Syndrome Global Registry
RettGive
Search
Digital Natural History Study
April 12, 2023
An Update on the New Rett Digital Natural History Study: How Our Children’s Medical Records Created a Decades-Long Study in Months
March 13, 2023
Cures for Many Rare Disorders Will Come More Quickly Because of Digital Natural History Studies
December 19, 2022
What We Accomplished in 2022
January 18, 2022
How Families and the Rett Syndrome Global Registry Will Help Cure Rett
December 7, 2021
How RSRT is driving the search for a Rett cure
July 10, 2021
Biopharma Tool Kit for Rett Syndrome Development Programs
$
40M
Take Action