Press Releases
January 25, 2018
TRUMBULL, CT — The Rett Syndrome Research Trust (RSRT) is pleased to announce that James Wilson, MD, PhD, director of the University of ...
October 5, 2017
TRUMBULL, CT — The Rett Syndrome Research Trust (RSRT) announced today the launch of the Rett Syndrome Clinical Trial Consortium. The primary ...
June 7, 2017
TRUMBULL, CT — The Rett Syndrome Research Trust (RSRT) is excited to announce that AveXis, Inc., has committed to advance a gene therapy ...
March 22, 2017
TRUMBULL, CT — The Rett Syndrome Research Trust (RSRT) announced today a historic plan to cure Rett Syndrome, a devastating neurological ...
July 25, 2016
TRUMBULL, CT — The Rett Syndrome Research Trust (RSRT) is pleased to announce that Alba Tull has joined its Board of Trustees. Additionally, ...
July 7, 2016
CALABASAS, CA/TRUMBULL, CT — ArmaGen, Inc., a privately held biotechnology company focused on developing revolutionary therapies to treat ...
March 8, 2016
Today the Rett Syndrome Research Trust (RSRT) announced research awards totaling nearly $9 million in 2015. This is the most research ever ...
February 24, 2016
The Rett Syndrome Research Trust (RSRT) is delighted to announce that Randall L. Carpenter is joining the organization in the role of Chief ...
November 25, 2015
The methyl CpG binding protein 2 gene (MECP2) produces a protein of the same name, the level of which is critical for normal brain function. ...
March 11, 2015
Mutations in the methyl CpG binding protein 2 gene (MECP2) are the cause of the devastating childhood neurological disorder Rett Syndrome. ...
February 3, 2015
Today the Rett Syndrome Research Trust (RSRT) announced research investments of $5.8 million awarded in 2014. RSRT’s sole and urgent goal is to ...
January 28, 2014
Continuing to expand the depth and breadth of high-impact research, the Rett Syndrome Research Trust (RSRT) awarded a record $7.2 million to new ...
August 20, 2013
The concept behind gene therapy is simple: deliver a healthy gene to compensate for one that is mutated. New research published today in the ...
July 28, 2013
Statins, a class of cholesterol-lowering drugs found in millions of medicine cabinets, may help treat Rett Syndrome, according to a study ...
June 25, 2013
The Rett Syndrome Research Trust (RSRT) is pleased to announce that Tim Freeman, who has nearly 20 years of experience in fundraising, public ...
June 19, 2013
Rett Syndrome, a woman’s disease most women have never heard of, will be the focus of a documentary film screening and panel discussion. The ...
June 16, 2013
Discovery of a mutant gene responsible for a disease is a milestone, but for most conditions, it may be only a first step towards a treatment or ...
April 9, 2013
Trumbull, CT/Manchester, UK — The Rett Syndrome Research Trust (RSRT) has appointed Rachael Bloom to its Board of Trustees. She is a founder ...