With Heavy Hearts

To our fellow parents and all who love a child with Rett syndrome,

We are deeply saddened to tell you that the girl in the Neurogene clinical trial who had complications has passed away. Neurogene’s update to the Rett syndrome community is linked below. We join all of you in prayer and thought for this exceptionally brave girl, and we offer our most heartfelt condolences to her family and loved ones. This is a somber time for our entire community. Our love and admiration for all our fellow families and their children is more poignant than ever.