Hello Rett Community!

I'm Amanda, and I'm so excited to join the RSRT team as Community Engagement Coordinator.

The journey leading me here has been both personal and professional. My 9-year-old daughter, Alanah, has Rett. Which, as many of you can relate,  has profoundly shaped my views and path in life. When Monica reached out to ask me if I was interested, it was a resounding yes! I have an incredible amount of respect and admiration for what RSRT is doing to find cures for Rett, so when she asked if I’d like to work with this community and contribute to accelerating the research, it was a no-brainer. 

So what is a “Community Engagement Coordinator” anyway? 

Well, my role here is to support the Rett community by enhancing our access and collective understanding of the work being done here at RSRT to cure our loved ones! Joining this team was a natural step in my quest to be part of something larger that promises hope and seeks solutions. I’m excited to collaborate with Monica and the rest of the team by contributing the perspective of another parent and getting first-hand insight into the advances being made with the groundbreaking research they are funding.

My background in behavior analysis and community outreach is strengthened by my experience as a caregiver and homeschooling parent to some incredible kids with different abilities.

As we look to the future, I’m eager to engage with our community on a personal level through initiatives like creating an Ambassador Program and invigorating fundraising efforts. My main goal is to connect with every family touched by Rett and make sure they feel seen, heard, and supported.

I’m here to help bridge the gap between complex scientific insights and the everyday lives of Rett caretakers in our community. I look forward to connecting with all of you and pushing tirelessly toward our shared goal of finding a cure for Rett.

Please don’t hesitate to reach out to me with any questions, comments, or suggestions: